What it's like to be disabled...
Trying to tell someone what it's like to be disabled is like trying to tell the difference between black and white to a blind person. What do you say? How can you explain it so that they can understand you? You can't. It's a horrible feeling when you know you can't walk or talk very well and when you rely on other people to do the things for you that you used to do everyday, when doing it was something you took for granted. Having to deal with suddenly becoming disabled is probably even harder to explain because you know what it's like to have everything at your disposal and then have it taken away. It's not an easy life to live, but depending on how much of a challenge you can cope with, it's not an impossible one either.
The first thing you have to deal with is the amount of isolation you live by. There's just no getting away from it. It will last as long as you do. That could be years. If you're reading this and are disabled you'll know that already. It's not an ideal situation to be in, but you'll live. How long you'll live for is another story, but try to not let that worry you. Worry about how you'll feel every waking moment. You'll hold your head in your hand (the one that works). To all intents and purposes you'll look asleep. Except you're very much awake. You sit in your chair, taking it all in. That's all you CAN do.
My brain is very active. My body is not. I sleep with my knees bent (a result of the stroke) and it takes two people - using a hoist - to get me out of bed in the morning.
I've had to put up with lots of things and will do for the rest of my life. Being disabled has meant i've had to suffer. When i'm doing physio exercises, partixcularly so.
So, what's it like to be disabled? Don't ask, you don't want to know..