I spent the morning reading and have tried, unsuccessfully, to find somebody who is disabled (like me). I used a link that Lee left on the blog and have found the website i'm looking for, but it's a very quiet one, called stroke.org. It's so quiet that they get some activity on there every six years or so (erm.. a joke) That doesn't really help me a lot because i need somewhere that's constantly busy. I might go looking for a blog instead, but they've probably been frightened off by the discrimination of boggers that are out there. Thwy're not all like that, but there are quite a few who are. "There's a guy in a wheelchair that's coming. Quick let.'s hide". Is the usual response i get. A disabled person's blog should be different.
It's really important for me to find someone i can relate to and that it's sooner rather than later. It's fine to deal with anybody on a one-to-one basis, but having somebody who has experience of what it's actually
like to be like me is something that i just haven't faced.
I found a website yesterday that looked interesting, about a girl - Jordan Bone. Jordan was hospitalized after a car accident when she was a teenager. She was just 15 years old and spent 6 months in hospital. She now has to use a wheelchair permanently
She's in her 20s now and has written a book about her life as an invalid. She's appeared as a guest on the ever-so-patronising 'Lorraine' show too. Jordan must have a whole wealth of knowledge on the subject of diability that is now available to her. Spending the rest of her life in a wheelchair is something i'd know all about. My mind went back to a question posed to her on the Lorraine show: who would she like to play her if her book ever became a film? Purlease. So fucking help me god, girl!
I plan to get the book as soon as i can. It'll be a good read, i reckon. Either that or it'll make a handy table support. She became disabled at an early age and now has to live the rest of her life in a wheelchair. It's an amazing story but it's also a tragic story too. Only time will tell how she gets on as she gets older.
I'm sorry, Treey. It's hard to believe you can find that empathetic connection. If I find it around here (in blogland), I'll send them your way.
ReplyDeleteBlessings and light.
Thanks Robyn. You look a hell of a lot like Debra Winger. That's not a bad thing at all.
DeleteNot bad at all. I just looked at some images of her. Thank you, Treey. I hope you're having a peaceful day.
DeleteThanks for the poem. You're such a sweetheart.
DeleteI hope you're able to find what your looking for.
ReplyDeleteI hope U2 find what they're looking for too. Thanks :-)
DeleteI met Lorraine quite a few years ago at a dinner party and she's actually a really a nice person. I think sometimes she's just a little too "nice" when she interviews people but rather that than Piers Morgan.
ReplyDeleteI'm sure she's ok. in very small doses.
DeleteThe questions on some shows most definitely cater for the lowest common denominator. Who would play you in a movie? Puhlease indeed.
ReplyDeleteI do hope you find the support you need. Soon.
Who would play me in a movie? Clive Owen is English so probably him. George Clooney is an American. Can't see him doing it. He'd turn his nose up at pie n chips. I wouldn't.
DeleteI actually know who Jordan Bone is! I ran across her blog a long time ago and was quite fascinated. I had no idea there was a book out about her experience. I'll have to check it out.
ReplyDeleteHey up, Martha. It's an English way of saying "hello". Feel free to use it, if you want to.
DeleteSeems being injured at such an early age as Jordan would be sad. To never experience adult situations on your own takes away any chance for memories of that period. The older I get, the more I cherished my memories.
ReplyDeleteYes, it's sad, but it doesn't mean that she is a sad person.
Deletethere has to be someone you can read!
ReplyDeletetalking about silly questions I love to hate it when there is a news event and they interview the neighbours who always say "he was a quiet guy" "i didnt think it would happen here" "i was just shocked"
It's like every event in every street is the same
The blogs I follow are good blogs. They're good to read. That reminds me: I must check for mistakes before posting a blogpost!.
DeleteDear Treey, I'm sure there must be another case like your somewhere on this big earth. Don't give up searching...
ReplyDeleteI've been thinking as I was pulling weeds yesterday while the sweat was dripping in my glasses about you stuck in that fancy wheelchair and about all the things I take for granted like taking a shower when I need one without having to wait for someone to help me. It made me feel pretty small.
I also was thinking about the many ways we communicate. It's really mind boggling when I think about it. We can speak, cry, sing, yell and even spit in disgust. We can show our feeling by our expression, our gestures, body language. We have sign language for the deft brail for the blind, we can write cursive or print to express our thoughts on paper, in the sand , we can type and send it instantly electronically like we do and we can speak on the phone and be heard on the other side of the world and be seen at the same time.. . I can read your thoughts on my computer. We've come a long way from smoke signals.
It's amazing that I can share my thoughts on your blog and I never even met you.
I was looking up the statistics on Stroke and the effects of stroke and the statistics were very high. In the UK, about 33% had Aphasia. So you're not alone. Maybe you are ahead of those who have the same thing as you. Just maybe. Interesting that more women have stroke than men.
Hugs, Julia
Don't wast your time thinking about me. There's always somebody worse off than yourself. Thanks for your thoughts though. I appreciate that. When I think about it I have to confess that Canada has played a big part in how I feel about things. It never used to. But now it does. My friend Alan Heathman emigrated there years ago. He loved the country.There's something special about the place.
DeleteTake care, Julia.
Thinking about others when I'm weeding is never wasted time.
DeleteWe are all connected somehow. At least, I'm trying to be conscious of how it can be to be stuck in a wheel chair. I could be there one day.
Like when my mother was dying from stomach cancer and could no longer wipe herself, she joked about it but under, I knew it was embarrassing for her and I said, Mom,your ass is my ass. We are all from the human race.
Good response. I wish you hadn't put that image in my mind, though.
DeleteWelcome to reality, I don't mean it in a negative way. We are all dependent on each others.
DeleteMy mom took care of me when I was unable to do it myself and now it was my turn. My mom stayed positive to her very last breath. She raised 17 children.
Hugs, Julia
It's a positive way of looking at it and really put me in my place
DeleteHi Terry :) I remember searching for sites with people who lived with anxiety and panic, I was mostly looking for forums so I could have active discussions. A lot of the time they were dormant too or people were so overly sensitive you couldn't say anything, even if there was no ill-intent. There are some forums out there, but I've found them to be more negative than helpful. It's hard to find people to interact with who know what you're going through personally. I hope you've found what you need!
ReplyDeleteHi Rain ;) I'll keep on searching. Somebody out there is doing a blog like me and facing a wall of silence for doing it.
DeleteI'll keep my eyes open for a blog like what you're looking for. Surely there is one or more out there!
ReplyDeleteThanks. I read a page which said "the four disabled blogs you should read". I contacted one of them and sent her blog, which was kept up-to-date, a comment. Hopefully, she'll reply.
DeleteI tried to leave a comment on your last post about Elvis but there was no place to accept my comment. I love Elvis songs but I never was one to loose my head over him like my friends.
ReplyDeleteToo bad it ended up the way it did for him. Like you said, it's hard to believe that it's been so many years since he passed away.
Hugs, Julia
I don't know by the comments isn't working, but thanks, anyway Julia.
DeleteHiya... I follow a page on Facebook that's run by a lovely lady to support people with children who have learning disabilities. Just a thought... you could set up something similar. The page is really busy, and people communicate and share there - have a look: https://www.facebook.com/thespecialparentshandbook/?ref=br_rs
ReplyDelete